David doesn’t know the days of the week yet, and quite frankly, I’m forgetting them, too. But this is probably okay. Graham and I are not looking to the weekends right now; we’re not not looking to Saturdays and Sundays when we’re both always home, when we could put the finishing touches on the sugarhouse, or take that November trip we had planned to NYC. Right now a Sunday is no different from a Monday or a Tuesday.
David had a chest x-ray again two days ago. It showed some partial collapse in his lungs due to the shallow breathing he experienced over the weekend. Since the CO2 level in his blood has remained higher than the doctors would like to see and his oxygen intake remains low, they re-intubated him yesterday. It was not the news we wanted to hear but it is not the worst thing that could happen. David is now breathing with a ventilator and therefore not struggling to take breaths on his own, and because of this he looks better. Sleeping off the meds yesterday.
Unfortunately, however, this morning’s x-ray showed his left lung has not improved even with the intubation and new measures might need to be taken. We’re at one of those lows we’ve been told about and we’re just waiting to rise back up. Luckily the ICN provides a parent line we can call to get updates when we’re not at the hospital. We’ve started to call this line in the early morning to help soften any bad news we might otherwise receive at rounds. With Graham back at work I have been going to rounds on my own. I find it a little easier to go into the hospital in the morning knowing what to expect from the night before, and to anticipate the changes in his care that might be coming. In the morning I ask Graham to call the nurses, and as soon as he dials the number I go into another room in our house and shut the door. I try to hear only his tone instead of his words, and then once he hangs up I come out and have him tell me what was said. For some reason this makes me feel more comfortable. Like somehow the news might be better if I hear it coming from Graham.
Despite all that has happened with his breathing, we have received good news from the past few days. David’s head ultrasound came back negative for bleeding in his brain. Although they will continue to monitor for this, we breathed a good sigh of relief.
Be back soon.
J & G & D