Just a Flash

Graham and I spent the night in the hospital last night in a room called the Koala Suite. It’s located right next to the ICN and it’s used for “rooming in,” which many parents do one or two days before going home. With a monitor inside the room that hooks into the central monitoring system, parents can practice taking care of their baby while still having the watchful supervision of the nurses from somewhat afar.

We didn’t room in with David. Not last night anyway, but that day is quickly approaching. I’m now breastfeeding David on a real mom, round-the-clock schedule, so we were given use of the room to have a place to sleep between feedings. He’s primarily nursing now, and taking only two tube feedings per 24-hour period to help supplement him with calcium and other growth goodies that preemies especially need.

David's an ounce away from 6lbs, so we can hardly call him preemie anymore.

Long long ago when David used to live on the critical care side of the ICN, they told us that once we caught even just a glimpse of the end, it would suddenly come in a flash. Just like that. After today’s doctor rounds we realized we’re in the midst of that flash. If David keeps on the trend he’s on, they told us he’ll be nestled in his own bed at home by the beginning of next week.

But as it goes, I had just finished typing that last happy homebound sentence and posting that blissful picture above when the doctor walked in and asked to talk with me. David just had a final discharge echo about an hour ago to check the status of his PDA. It’s now very very small, which is good news. However, the doctor wanted to let me know that in the results of the echo they found something else, something unexpected, right behind David’s heart. They can’t identify it because it’s not something that they routinely see. It could just be a lymph node or a herniation in his stomach, or just something fleeting that has mysteriously shown up to stretch us to our very limits. I like to think it’s that: something benign and fleeting, and that as unexpectedly as it has appeared it will suddenly fade away.

We won’t let news like this get us down, not when we don’t know what this news means. That’s a waste of energy. And we’ve learned from David that it’s not worth wasting energy when you have only a little energy to waste.

This is how David likes to spend his energy.

Many of you have asked about my dad. He’s still in the ICU, still weak and quite sick, but he IS on the mend. He was extubated on Tuesday, after my sister told him David was beating him in the oxygen weaning race, and he’s slowly getting his voice back. My aunt and uncle and cousin have come over from England to be with him this week and my sisters are still there too. My brother drove back to Virginia from South Carolina today, so he has all the support he can get. And as an entire family we continue to spend eventful day after day in the hospital. But at the fast approaching end of all of this I know I’ll finally be telling you the boring news, that my dad and David are both happy and healthy and home.

J & G & D

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12 thoughts on “Just a Flash

  1. Jane, We are so relieved and happy for the whole family. Yes a bump in the road for David, but think of the road 2months ago. And your dad is also a miracle. All will be well for you and everyone who has followed you through this. pete and chris richardson

  2. There’s that dang word ‘routine’ again – popping up to wreck your carefully cultivated routine. Hoping that it’s something totally uninteresting and that you, Graham and David find yourselves sharing many low-sleep nights at home soon. When we first got home, the boys (came home separately) were wondering where their ‘fan clubs’ were. Why it took mommy, groggy with no sleep, a minute longer to respond than the nurses who were on duty. May you soon hear those wails of injustice at home 🙂 Glad to hear that your dad has risen to the spirit of competition as well. Soldier on, David’s family!

  3. David is right on schedule with his weight considering this month would have been his birthday right?
    So glad the breast feeding is going well and your comfort zone peaking as you prepare for the long awaited trip home.
    The recent mystery spot is yet another challenge to consider, but like you said, “Don’t worry till you have to.”
    Your Dad’s progress sounds good and for sure all the family support has helped him to fight this unfortunate infection.
    We continue to pray and send our love to the whole family. Peter Diane Bruell

  4. Go, Baby, Go! We all here cheering you guys on and know you have our undying support at each and every crossroads. Love you, Peak, Tom & Court

  5. The end is in sight for sure, G, J, & D! We can’t wait to think about you all at home together, snuggled in. And to echo Court, Go Baby Go!! Much love, Marisa & Eamonn

  6. Hang on tight to each other as you prepare for David’s big move home. What a glorious day that will be!! Our prayers will be with all of you as you leave the daliy support of David’s nurses, doctors and all the other team members that have taken care of and loved David from the first day he arrived.What a blessing they have been to you and you to them. I am sure the next echo will be all good news!! Graham and Jane, you are wonderful parents. Please give each other a huge hug for a job well done.
    So glad that Terry is doing better. He would be so very proud of his children. You have all supported your mom and dad so beautifully during his illness. What a splendid day when grandson and grandad are both home!!

    Connie and Tom

  7. I love seeing pictures of David without the cords and tubes. 6 pounds – hooray! Keep it up David, Jane and Graham. Thank goodness your father is on the mend.

  8. Dear Jane, Graham and David,
    I will focus on the flash! It does now seem like a long time ago when I spoke to you shortly after David’s birth and here you are approaching the time of his homecoming. Miracles abound.
    That said, I am so concerned about your dad. It’s time for all the Lemasuriers to come home.
    all our love and prayers,
    Kathy and Finn

  9. Jane, your writing is so graceful and full of life, Christian showed me the link to this blog. It is wonderful. Bravo to you for sticking with the pumping and determination to breast feed, you will be so glad did, David looks fantastic. I can only imagine what you are going through, our guys were such tanks at birth, but we still worried so, I think it goes with the parent thing.

    Best wishes to you all!

    Hebe

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